Advance care planning (ACP) is a discussion about the kinds of medical care a person would want as they near the end of their life or lose the ability to make their own health care decisions. ACP usually includes conversations with the patient and his or her family members and health care team. Among the questions ACP addresses are:
Your Life, Your Choices is a free two-hour workshop offered at several Kaiser Permanente clinics in Western Washington and in Spokane. The goals of the workshop are to help people:
The workshops are offered in the spring and fall. You don’t have to be a Kaiser Permanente member to participate, and you can bring a guest at no charge. Visit Kaiser Permanente Washington's website to learn more.
Registration is required. For more information and to register, call the program coordinator at 1-866-458-5276 or send an email to firstname.lastname@example.org.
Ideally, ACP conversations will happen when people can clearly express their wishes and actively participate in their health care decisions. That’s why ACP is so important for people who have early signs of Alzheimer’s disease or another form of dementia. It gives them a chance to make their wishes known and fill out advance directive forms while they are still able to do so. This helps ease the burden for loved ones who must step in to make decisions about their health care in the future.
“It’s difficult for all of us to talk about end-of-life care,” explains Dr. Barbara Walker, a Kaiser Permanente physician in hospice and palliative care. “But it’s especially important for people who might have dementia to talk about ACP when they still have full decision-making capacity. I tell patients that talking about care preferences is something you do for your loved ones because it’s easier to make decisions for yourself than to make them for someone else.”
Forms you might need:
Health and wellness resources from Kaiser Permanente:
More resources for caregivers from Kaiser Permanente:
Other resources for families and health care professionals:
The information on this page was developed based on focus group research that explored when and how people with early signs of cognitive impairment want to learn about ACP. The research is part of a project funded by the Partnership for Innovation and led by Dr. Walker and KPWHRI Associate Investigator Robert Penfold, PhD.
Dr. Robert Penfold talks about how his father’s death inspired him to work on advance care planning for people with mild cognitive impairment.
Read about it in Healthy Findings.